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| I just saw the worst thing ever on TV - The Boy Whose Skin Fell Off |
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Posted by: The Jays - 09-15-2005, 03:18 AM - Forum: Entertainment Unlimited
- Replies (30)
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TLC :: The Boy Whose Skin Fell Off
Quote:Thirty-six-year-old Jonny Kennedy was born with a terrible genetic condition called dystrophic epidermolysis bullosa, which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to his final fight against terminal skin cancer.
In his last months, Jonny decided to work with a filmmaker to document his life and death. The result is a film that tells the uplifting, confounding and provocatively humorous story of an amazing man on a mission to make his final days on earth memorable. Even at his very final moments, Jonny was still working desperately to raise awareness of this debilitating condition and to help find a cure. Jonny was also frank about his feelings on his upcoming death and practical about the arrangements. We join him as he chooses his coffin and has the symbols of his life etched into it. Not shying away from the grim reality of a terminal condition, this film is a celebration of a life lived to the very brim.
Combined with the fascinating drama of a man who has no hands because the skin came off and exposed his bones, is the cheery melodic music and graphic where the words "The Boy Whose Skin Fell Off" fly into place across an azure background, as if they were clouds, and this was some sort of cheerful story of hope.
Nope, it's all about watching a man die of a rare terrible skin disease. Horrible.
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| 24 days until freedom |
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Posted by: diceisgod - 09-15-2005, 12:19 AM - Forum: The Pit
- Replies (39)
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I have the last class of my life on Oct 17 and then I am completely free.
I have little doubt something horrible will happen before or on that date.
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